DMAF & Research News


Please join us in congratulating Dr. Jeffrey Lipton who was honored for his dedication to research in hematology and stem cell transplantation at the National Cancer Center’s 60th Anniversary Gala and Nobility in Science Award Presentation in New York City on June 12, 2013. Dr. Lipton has worked tirelessly on [...]

The American Society of Hematology Honors Senator Robert Casey and Patient Advocate Marie Arturi with 2011 Public Service Awards December 1, 2011// < ![CDATA[ // < ![CDATA[ // < ![CDATA[ ektLocalizeDate('2011-12-01','ID0EH') // ]]&amp;gt; (WASHINGTON) – The American Society of Hematology (ASH) will recognize Senator Robert Casey (D-PA) and Marie Arturi, co-founder and Executive Director of the [...]

        On Friday August 24th, Marie and Manny Arturi were grateful and humbled to have the opportunity to meet Vice President Joe Biden! Our most heartfelt thanks for your friendship and continued support Congressman Tim Bishop! 

CDC recently announced that Dr. Lisa Richardson joined the NCBDDD/Division of Blood Disorders as the Division Director on April 8, 2013. Dr. Richardson is a medical officer at the CDC. Dr. Richardson most recently served as the Associate Director of Science in the Division of Cancer Prevention and Control in [...]

Please join us in sending positive energy and prayers to our friend Congresswoman Carolyn McCarthy (NY-4) who was recently diagnosed with a form of treatable Lung Cancer. As many of you know, Congresswoman McCarthy has been a tireless advocate for the DBA community, helping to give us a voice in Washington, [...]

The Daniella Maria Arturi Foundation is proud to participate as an exhibitor at The 2011 American Society of Hematology Meeting and Exposition, San Diego, California Dec. 10 – 12! We look forward to seeing you!

Editor, David Rattiner at Dan’s Papers Inc.”  recently sat down with Marie Arturi, CEO of and Executive Director of the Daniella Maria Arturi Foundation to discuss her idea behind, her vision, her goal and how will directly benefitthose suffering from Diamond Blackfan Anemia. Click here to read the article in full.         Buncee is [...]

Our heartfelt thanks to the Sabatino family,  our Washington D.C. Experience trip auction winner from this years “Hope on the harbor…for a DBA CURE” fundraising event held June 2nd at Battery Gardens in New York City. We are humbled by families like the Sabatino’s and Congresswoman Carolyn McCarthy for their [...]

Patient Advocates: Advancing Research from outside the Lab Copyright 2011 Elsevier Inc. All rights reserved. Cell Stem Cell, Volume 8, Issue 5, 466-467, 6 May 2011 doi:10.1016/j.stem.2011.04.014 Anna C. Davison Santa Barbara, CA, USA Scientists aren’t the most likely models to star in a calendar, but Sabrina Cohen, a quadriplegic since a car accident at 14, believes [...]

Seminars in Hematology Volume 48, Issue 2 Pages 73 – 144 (April 2011) Diamond Blackfan Anemia and Ribosome BiogenesisessEdited by Benjamin Ebert MD, PhD, Jeffrey M. Lipton MD, PhD Diamond Blackfan Anemia and Ribosome Biogenesis: Introduction Benjamin Ebert, Jeffrey M. Lipton Patient Advocacy in Diamond Blackfan Anemia: Facilitating Translational Research and Progress Towards the Cure [...]


Research News


 For years, physician scientists have been trying to model the abnormal blood cell production that occurs in patients with DBA. These efforts have involved studies on yeasts, flies, fish and mice.  Human models have been difficult to create and previously relied on samples of patient bone marrow. As published this week [...]

Click here to read the exciting findings published by Dr. Harvey Lodish of Whitehead Institute titled, “Scientists Identify Potential Drug Target for Treatment-Resistant Anemias.

Dear DBA Patients and Families: We are pleased to announce the opening of: “The Use of Novel Therapies to Reconstitute Blood Cell Production and Promote Organ Performance, using Bone Marrow Failure as a Model: A Pilot, Phase II Study of the Amino Acid Leucine in the Treatment of Patients with Transfusion-Dependent Diamond [...]

Please join us in congratulating Dr. Jeffrey Lipton who was honored for his dedication to research in hematology and stem cell transplantation at the National Cancer Center’s 60th Anniversary Gala and Nobility in Science Award Presentation in New York City on June 12, 2013. Dr. Lipton has worked tirelessly on [...]

Anna Rita Migliaccio, PhD, Professor of Medicine, Hematology and Medical Oncology and member of The Tisch Cancer Institute of Mount Sinai School of Medicine, has been awarded a Research Project (R01) grant from the National Institutes of Health (NIH) for her research project “The human glucocorticoid receptor and normal and [...]

2012 Science and Environment Medal Recipient This medal recognizes a federal employee for a significant contribution to the nation in activities related to science and environment (including biomedicine, economics, energy, information technology, meteorology, resource conservation, and space). Neal A. Young Position: Chief of the Hematology Branch, National Heart, Lung and Blood Institute Agency: National Institutes of [...]

NIH Wants To Hear from You! NIH Seeks Comments on Proposed Common Fund Programs Deadline: September 14 The NIH Common Fund supports exceptionally innovative programs that are inherently high-risk but have the potential for high-payoff by catalyzing research across NIH and in the Biomedical research community. New ideas for Common Fund programs are [...]

The Director’s Pioneer Awards Program: NIH welcomes proposals for 2012 NIH Director’s Pioneer Awards for innovative approaches to major challenges inbiomedical or behavioral research. NIH expects to make at least 7 Pioneer Awards in summer 2012.  To continue its strong record of diversityin these programs, NIH especially encourages women and [...]

New Innovator Awards Program: Up to $1.5 million in direct costs over 5 years For early career stage investigators (ESI), defined as those who have not received an NIH R01 or similar grant and are within 10 years of completing their terminal research degree or medical residency. The deadline for submitting Award applications is [...]

GOP lawmakers: Spare NIH from cuts By Ian Swanson05/27/11 A group of Republican lawmakers has asked appropriators to avoid making deep cuts to the budget of the National Institutes of Health. The request that NIH be spared highlights the difficult choices facing the GOP as it moves from writing a budget to wringing [...]