“Hope On The Harbor… For A DBA Cure” was held June 2, 2011!

  • Hope On The Harbor… For A DBA Cure” was held June 2, 2011!



June 2nd marked a beautiful evening filled with good friends and supporters of the Daniella Foundation at New York City’s lower Manhattan waterfront oasis, Battery Gardens, to raise awareness and much needed funds for continued DBA scientific research initiatives.  A cocktail reception, silent auction, restaurant row raffle and live entertainment by electric violin sensation, Sarah Charness, the granddaughter of our own Dr. Nathan, highlighted the evening as supporters enjoyed the panoramic views of New York Harbor and the Statue of Liberty at sunset.

Daniella Foundation, Executive Director, Marie Arturi showcased Buncce.com, a unique, new social publishing website the Arturi’s launched this Spring, by presenting a Daniella Foundation “flow” Buncee to highlight the impact increased DBA awareness, education and funding is having on the DBA community’s efforts to find a DBA cure! 

Marie also explained her inspiration for Buncee, which was born form her desire to come up with more creative ways to thank the Foundation’s community of DBA supporters following scientific conferences and events like Hope on the Harbor. With its launch this Spring, Buncee.com is now enabling people around the world to share information more creatively and effectively, whether for professional purposes or for sending a new style of custom e-cards, notes and collages and its success is helping the Daniella Foundation continue to raise awareness and support for DBA research and a cure.

Dr. David Bodine, Chief of the Genetics and Molecular Biology Branch at the National Human Genome Research Institute also highlighted the evening by giving our supporters the opportunity to see the real progress and potential in cutting edge technology now being applied to DBA research initiatives through his talk, “The impact of the Human Genome Project on Biomedical Research and DBA”.  We are immensely grateful to Dr. Bodine for taking the time out of his busy schedule to join us AND most importantly for helping our supporters understand the progress being achieved.

Our hearts were also touched when 27 year old environmental scientist, Rachel Foley, who’s been in remission for twenty four years, spoke about how she is one of the “lucky ones”, and pointedly describing that while she has DBA, DBA does not define her. She emphasized the tremendous impact each dollar raised has on DBA children AND adults, by giving them the chance to live the type of life she’s been fortunate enough to live and by bringing us one step closer to the big party… not a cocktail, not a silent auction, but the DBA IS CURED Celebration Party! As Rachel put it, she is dedicating her free time to “taking the DBA world by storm”… and the Daniella Foundation could not be more grateful.

We want to express our most heartfelt appreciation to our event volunteers, attendees and especially our event sponsors for partnering with us to make our “Hope On The Harbor For A DBA Cure” fundraising event a complete success!

View pictures from Hope On The Harbor….For A DBA CURE! 

For more information about future events, or if you are interested in sponsoring an eventplease contact Lauren Carroll lcarroll@dmaf.org